Eliciting patients´ priorities and preferences

Main objectives:

  • To identify key patient-prioritised outcomes as reported in the literature for each of the four chronic conditions
  • To prioritise the Core Outcome Set (COS) identified in WP2 to ensure the inclusion of patient-important outcomes for the evaluation of effectiveness of self-management interventions (SMIs)
  • To ensure that patients’ views and gender and socioeconomic dimensions that could potentially affect equity are taken into account throughout the project


This phase of the project aims to ensure that outcomes truly reflect patients´ priorities and preferences. A review of published and grey literature is used to identify how patients value self-management outcomes in the relevant condition. A modified Delphi survey with four panels of patient and carer representatives (one for each condition, each including 8-15 members) ensures the reflection of patient preferences in further comparative analysis. Patients are asked to prioritise relevant outcomes using explicit criteria and a Likert scale. In a final stage, patients are brought together with other stakeholders in a one-day face-to-face workshop to achieve consensus on the final COS to be included in the project. We create mechanisms to ensure that patients´ views, gender issues and socio-economic dimensions are taken into account throughout the different phases of the project.

Leading partner: European Patients’ Forum (EPF), Belgium

Other partners involved:

  • Fundación Avedis Donabedian (FAD), Spain
  • Institute for Medical Technology Assessment (iMTA), The Netherlands
  • Netherlands Institute for Health Services Research (Nivel), The Netherlands
  • Fundació Privada Institut de Recerca de l’Hospital de la Santa Creu i Sant Pau (IR-HSCSP), Spain
  • OptiMedis AG, Germany
  • University of Ioannina (UOI), Greece