Call for Patient Representatives for the COMPAR-EU project
EPF is planning to expand and diversify the group of patients and patient representatives involved in the COMPAR-EU patient panel.
Do you live with Type 2 Diabetes, Obesity, COPD or Heart Failure, or have experience in these diseases and are interested in joining an online group? We invite you to express your interest today!
The patient panel is an informal working group composed of EPF members, individual patients and also patient advocates from across Europe. The group is involved in project activities through various channels and meets (online) for monthly webinars. The patient panel supports in the production of materials in lay language and development of other project outputs. In 2021, it will focus on the functionality of the COMPAR-EU IT platform and materials on cost effectiveness.
All these activities will bring even more of a patient focus to COMPAR-EU, and showcase the direct benefits of patient involvement. The group is on voluntary basis, however, a compensation is foreseen.
Are you interested, or know someone that may be interested in joining the patient panel?
You can reach out to EPF Senior Programme Officer, Lyudmil Ninov: email@example.com
Call for Panel members
Do you want to be part of a panel that will formulate clinical recommendations about the most promising self-management interventions for patients with obesity?
Your participation will help ensuring that effective and safe self-management interventions are equally accessible for patients with obesity.
We are looking for healthcare professionals and patients/caregivers that will formulate recommendations about the use of self-management interventions for patients with obesity. For more information please click here.
If you are interested in participating in this panel, please register here by 19 March 2021.
Call for papers for a special issue
Dear researcher or expert in the field of self-management,
The International Journal of Environmental Research and Public Health (IJERPH; ISSN 1660-4601, IF 2.849; Q1 (38/162) in Public, Environmental and Occupational Health (SSCI)) is currently running a Special Issue entitled “Implementation of Self-Management Interventions in Chronic Disease Care: Challenges and Lessons Learned”, with Dr. Monique Heijmans and Dr. Carola Orrego serving as Guest Editors. If you are working in the field of self-management and chronic diseases and have recent scientific output, we believe that you could make an excellent contribution. Thus, we are delighted to invite you to contribute to this Special Issue devoted to gathering evidence on experiences in chronic diseases; self-management; complex interventions; contextual factors; implementation research; etc.
For further details, please follow the link to the Special Issue website.
The submission deadline is 31 October 2021. You may send your manuscript any time now until the deadline as individual papers will be published on an ongoing basis. Submitted papers should not be published or under consideration for publication elsewhere. We also encourage authors to send a short abstract or a tentative title to the Editorial Office in advance (firstname.lastname@example.org).
IJERPH is fully open-access. Open access (unlimited and free access by readers) increases publicity and promotes more frequent citations, as indicated by several studies. Open access is supported by the authors and their institutes. An article processing charge (APC) of 2300 CHF (Swiss Francs) applies to papers accepted after peer review.
For further details on the submission process, please refer to the instructions for authors at the journal website.
We look forward to hearing from you.
Dr. Monique Heijmans,
Dr. Carola Orrego
Formation of a panel to formulate recommendations for SMI for Type 2 Diabetes Mellitus
Sixteen participants from nine European countries conform this panel. There is a broad representation of stakeholders including health services researchers, endocrinologists, health economists, family practitioners, self-management experts, nurses, nutritionists, patient advocates and guideline methodologists. They are active since last week of October.
The panellists will:
- Rate the importance of included outcomes
- Propose the magnitude of effects thresholds.
- Discuss and agree on draft evidence summaries prepared by the COMPAR-EU Consortium about the effects of interventions, the economic considerations, values and preferences of patients, and contextual factors of self-management interventions.
- Discuss and agree on draft judgments for the different criteria relevant for the formulation of recommendations, included in the evidence to decision (EtD) framework.
- Discuss, formulate and agree on draft recommendations, conclusions and other related contents (e.g. summary of findings tables, narrative summaries, etc.).
Launch of Self-Management Europe
Research partners set up a new European Research and Innovation Centre on Patient Empowerment and Self-Management: Self-Management Europe.
It is an exploitation initiative of the COMPAR-EU project with the aim of developing the potential of people, professionals, organisations, systems, and communities for creating a society that strengthens empowerment and self-management in people with chronic diseases. Through capacity building, the centre provides knowledge, skills, motivation, and competency to people to act as leaders of self-management and empowerment enhancement in everyday life to improve health and quality of life for all.
Whilst there are various ongoing initiatives in Europe to support self-help and self-management with whom the research centre will work in partnership. However, it addresses the critical gap of accelerating the translation of critical research findings in practical applications to benefit patients, organisational and clinical processes and health innovations.
The newly formed initiative recently published a press release which you can read here.
Winner of our COMPAR-EU platform call
We are happy to announce that Sonicon, a company focused on providing reliable software solutions, will support the development of our European self-management platform hosting different decision aids and further key results resulting from our project.
We are ready to start our joint collaboration on this healthcare innovation!
CLOSED – Call for proposals for the COMPAR-EU platform development
Two-days workshop on NMA
During the 17th and 18th of February, a 2-days workshop on advanced methods for network meta-analysis (NMA) took place in Barcelona. We had theoretical and practical sessions on R Studio, including a fruitful discussion on the additive model for NMA and its implementation in the COMPAR-EU project. Thanks to Dimitris Mavridis from UOI for the stimulating lectures, and to Iberoamerican Cochrane Center and FAD for the organization.
Publication of the COMPAR-EU protocol
Our protocol paper is now published at BMJ. You would like to know how patients are included in the project and how our analyses, the Network Meta-analysis, the cost-effectiveness analysis, and the contextual analysis, look like? Read our protocol paper online at BMI.
Cochrane Colloquium 2019
This year´s face-to-face Cochrane Colloquium was cancelled due to unprecedented situation of civil unrest across Santiago. However, the event was held online from 2-6 December 2019. Virtual CochraneSantiago highlighted the theme of ‘Embracing Diversity’. The Colloquium explored ways in which Cochrane could address the challenge of diversity in many areas: how to inform complex health decisions with diverse types of evidence; how to engage people with low health literacy; how to reach non-English-speaking audiences; how to explore new ways of delivering evidence from reviews (e.g., podcasts, videos); and how to incorporate diverse types of evidence in reviews (qualitative evidence, mixed methods evidence, etc.).
Our five poster presentations are still available online:
- The perspective of patients living with chronic heart failure on self-management interventions: A mixed-method overview for the COMPAR-EU project
- The perspective of patients living with obesity on self-management interventions: A mixed-method overview for the COMPAR-EU project
- The perspective of patients living with type 2 diabetes mellitus on self-management interventions: A mixed-method overview for the COMPAR-EU project
- What do patients and their caregivers value on self-management interventions for chronic conditions? A scoping review of systematic reviews for the COMPAR-EU project
- Incorporating patients´preferences in the development of core outcome sets for four chronic conditions: COMPAR-EU project