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The COMPAR-EU platform launched

Evidence for existing self-management interventions (SMIs) is increasing exponentially, as is the need for strategies and tools to facilitate their implementation. COMPAR-EU consortium partners are delighted to announce the launch of an information technology platform to support decision making on SMIs for different end users with the four relevant chronic diseases: type 2 diabetes, obesity, COPD and heart failure.

This interactive COMPAR-EU platform hosts several products to support decision making on self-management interventions

Interactive Summary of Findings tables (iSoF)

The iSoF helps to guide developers and healthcare professionals in finding and understanding the main results regarding the effectiveness of SMIs for core outcomes sets (COS) that are considered relevant for stakeholders of the four chronic diseases.

Evidence to Decision frameworks (EtD) and recommendations

The purpose of this framework is to help policymakers and managers make decisions about SMIs targeted to the 4 chronic diseases when more than two options are available. EtD frameworks can inform on the pros and cons of each intervention, ensure the criteria that determines a decision are being considered, help to structure discussion and form the bases for decisions transparent to those affected by a policy decision. Ad hoc panels have constituted teams to formulate recommendations for each condition using the EtD frameworks.

Patient Decision Aids

These tools are designed to help reach a shared decision between the healthcare professional and patient regarding SMIs that are tailored to patient preferences regarding specific outcomes or intervention characteristics.

Results from network meta-analysis, cost-effectiveness and contextual factors

Specific results derived from the network meta-analysis, cost-effectiveness analysis, and interactive report of contextual factors influencing the implementation of SMIs have also been integrated into the platform.

Repositories of RCTs, tools and interventions

This section is especially helpful for researchers and clinicians. It presents a catalogue of interventions classified by a taxonomy, a catalogue of self-management tools (composed mainly by PROMs and PREMs) to evaluate the relevant outcomes (COS), and a catalogue of randomized control trials that have analyzed SMIs.

Further information

Link to the press release: https://self-management.eu/wp-content/uploads/2022/07/PressRelease_COMPAREU_platform.pdf

Link to the COMPAR-EU platform: https://platform.self-management.eu/

Invitation: COMPAR-EU workshop May 2022, digital

The COMPAR-EU project team invites you to join a workshop on Exploring market opportunities of self-management tools. It will take place on 19/05/22 – digital.

What do we want to explore with you?

  • How decision tools could be embedded in the value chain and assess commercial issues surrounding market exploitation, such as competition and procurement procedures?
  • How to market the decision tools to different stakeholder groups?
  • What are the opportunities for implementation and what are the barriers to the use of self-management decision tools?

Attending the workshop, you will get an opportunity to:

  • Learn about new innovations, self-management tools, and state-of-the-art research developed by the COMPAR-EU consortium
  • Network and exchange knowledge with other companies working in the same field
  • Be a part of the transformation of research results into the practice
  • Start a new cooperation to implement self-management tools in real life

Please register here: WORKSHOP 19/05/22

We look forward to seeing you!

For more information, please contact Paula Zietzsch via e-mail contact@self-management.eu

Your COMPAR-EU Team

Call for tender for design work on the COMPAR-EU project

On 15 February 2022, the European Patients’ Forum published a new call for tender to produce attractive and accessible leaflet and video designs as part of its work in the COMPAR-EU project.

COMPAR-EU is a Horizon 2020 project aiming to identify, compare, and rank the most effective and cost-effective self-management interventions in four chronic conditions. In this project, EPF leads the workstream that aims to identify what outcomes are most important to patients, and ensure that their views, gender, and socioeconomic dimensions are taken into account.

As part of this work, EPF has developed lay summaries and leaflets to adapt the technical reports of the project into language that is accessible for lay-users including patients, but also the wider public. These materials – the leaflets and videos – must also be visually appealing in a way that facilitates their readability.

Does this sound like it is within your expertise, or the expertise of someone you have worked with?

Applications must be sent in by 11 March 2022, 23:59.
Further details at this link: https://bit.ly/3LzLKKe

COMPAR-EU Newsletter #7

Dear readers and friends,

since the summer holiday period, when we were all able to enjoy the sunshine and recharge our batteries, we have made a lot of new advances in our work packages. This year, we could also meet and discuss the progress and challenges in person at the consortium meeting in Hamburg. In this newsletter you can find updates about our work: how we have involved patients in the co-design of the COMPAR-EU platform, how we are working on interpreting the effectiveness of self-management interventions and how we estimated the costs of these interventions. In terms of platform development, we are starting to integrate a part of generated evidence and work on design of other key sections synthesizing research outcomes. The platform will also include decision-making tools tailored for different end users and relevant stakeholders, and we are excited to report on the progress in developing these tools. Furthermore, we would like to put a spotlight on the new initiative, called “Self-Management Europe” that published already two “Alerts” about practical recommendations to enhance self-management and patient empowerment in practice. The initiative could complement the work done in COMPAR-EU beyond the project.

Please enjoy reading our newsletter and learn more about the COMPAR-EU project progress. We wish you a healthy, fun-filled and stress-free holiday season in advance.

Your COMPAR-EU team

Read the full newsletter here.

Now published: four lay summaries

A lay summary is a brief summary of a research project that is used to explain complex ideas and technical and scientific terms to people who do not have prior knowledge about the subject. They are important not only for patients but also for lay persons and non-specialist medical professionals.

The first four lay summaries are now published! Read more here:

 

More information needed?

Please contact Lyudmil Ninov (EPF) by email: lyudmil.ninov@eu-patient.eu

Consortium meeting in Hamburg

This year, we were finally able to meet in person again. Our consortium meeting took place from October 22 to 23 in Hamburg and was hosted by OptiMedis. We focussed on the results of the network meta-analysis, the COMPAR-EU platform and much more. Consortium meetings are very important for us, as they promote interactive group discussion and drive our work forward.

                      

Self-management Europe Alert #2

Welcome to the second issue of the Alert of Self-Management Europe. These Alerts aim to contribute to greater awareness and accessibility of self-management support in patients, especially in those living with a chronic condition. The Alerts address healthcare professionals, managers and other stakeholders looking for practical recommendations how to implement practices that enhance self-management and patient empowerment.

Read the full alert here.

This is a publication by Self-management Europe. The European Research and Innovation Centre on patient empowerment and self-management, called “Self-management Europe”, is a not-for-profit partnership of organisations working on patient empowerment and self-management with a special focus on chronic diseases. Find out more  here.

GIN Conference 2021

We are happy to inform you that we will present two Poster Presentations at the GIN Conference 2021.

The 16th GIN conference will take place virtually from 25 to 27 October.

The theme for 2021 will be: Future Forward: Relevant, implementable and sustainable guidelines.

Our contributions:

  1. Development and user-testing of patient decision aids for self-management interventions for four chronic conditions: COMPAR-EU project.
    Presenting Author: Claudia Valli
  2. Selection process of the most promising self-management interventions for four chronic conditions: a GRADE based approach using network meta-analysis.
    Presenting Author: Jessica Beltran

Registration for GIN 2021 is now open!

For more information, click here.

Call for Panel Members on Self-Management Interventions for Heart Failure

Help us to improve health care of patients with Heart Failure!

Are you a patient with Heart failure (HF) or a health care provider?

Join a panel that will formulate clinical recommendations about the most promising self-management interventions (SMI) in patients with HF.

Your work will ensure that SMIs are effective, safe and equally accessible for patients with HF in Europe and around the globe.

For more information, please click here.

If you are interested in participating, please register here by 3 September 2021.

 

Self-management Europe Alert #1

Welcome to the first issue of the Alert of Self-management Europe. These Alerts aim to contribute to greater awareness and accessibility of self-management support in patients, especially in those living with a chronic condition. The Alerts address healthcare professionals, managers and other stakeholders looking for practical recommendations to implement practices that enhance self-management and patient empowerment.

Read the full alert here.

This is a publication by Self-management Europe. The European Research and Innovation Centre on patient empowerment and self-management, called “Self-management Europe”, is a not-for-profit partnership of organisations working on patient empowerment and self-management with a special focus on chronic diseases. Find out more  here.