Publication of the COMPAR-EU protocol
Our protocol paper is now published at BMJ. You would like to know how patients are included in the project and how our analyses, the Network Meta-analysis, the cost-effectiveness analysis, and the contextual analysis, look like? Read our protocol paper online at BMI.
Cochrane Colloquium 2019
This year´s face-to-face Cochrane Colloquium was cancelled due to unprecedented situation of civil unrest across Santiago. However, the event was held online from 2-6 December 2019. Virtual CochraneSantiago highlighted the theme of ‘Embracing Diversity’. The Colloquium explored ways in which Cochrane could address the challenge of diversity in many areas: how to inform complex health decisions with diverse types of evidence; how to engage people with low health literacy; how to reach non-English-speaking audiences; how to explore new ways of delivering evidence from reviews (e.g., podcasts, videos); and how to incorporate diverse types of evidence in reviews (qualitative evidence, mixed methods evidence, etc.).
Our five poster presentations are still available online:
- The perspective of patients living with chronic heart failure on self-management interventions: A mixed-method overview for the COMPAR-EU project
- The perspective of patients living with obesity on self-management interventions: A mixed-method overview for the COMPAR-EU project
- The perspective of patients living with type 2 diabetes mellitus on self-management interventions: A mixed-method overview for the COMPAR-EU project
- What do patients and their caregivers value on self-management interventions for chronic conditions? A scoping review of systematic reviews for the COMPAR-EU project
- Incorporating patients´preferences in the development of core outcome sets for four chronic conditions: COMPAR-EU project
EPF Congress on Patient Involvement
The first ever European Congress on patient involvement provided an exceptional opportunity for dialogue and engagement with a wide range of health players who aspire to make patient involvement a reality. At the event on 12 – 14 November in Brussels, it was explored why patient involvement leads to better outcomes for patients and society, and how patient involvement can be achieved in practice across Europe.
We interviewed a patient who highlighted that there are three key elements of successful patient self-management:
- The patient knows what is expected
- The patient agrees with what is expected
- The patient must be able to follow the plan. Both, in actions and financiall
The event offered the great opportunity to discuss our approach on patient involvement in COMPAR-EU.
Fun fact: The stairs of the venue attract to use them: They were marked with the number of calories you will lose while climbing the stairs.
G-I-N & JBI Conference 2019
This year´s theme of the conference that was organised by the Guidelines International Network in partnership with the Joanna Briggs Institute (JBI) was “Trustworthy Evidence For Questions That Matter – The value of guidelines in 21st century healthcare”. It was an interesting event relevant to all healthcare professionals and anyone with an interest in addressing evidence-practice gaps by promoting best practice and improving the quality and safety of health care.
Our partner IR-HSCSP presented two posters:
- How to compare the (cost-)effectiveness of self-management interventions: using network meta-analysis to include both direct and indirect assessments of multiple treatment options
- Development and external validation of a comprehensive Taxonomy of self-management interventions in chronic onditions: the COMPAR-EU taxonomy.
ISQua´s 36th International Conference
The 36th International Conference of ISQua, the International Society for Quality in Health Care, took place from 20-23 October 2019 in Cape Town, South Africa. This year’s theme was “Innovate, Implement, Improve: Beating the Drum for Safety, Quality and Equity.”
Our partner FAD had two oral presentations!
- Advancing patient-centred care: development and external validation of comprehensive taxonomy of self-management interventions in chronic conditions
- Are we researching in the areas that matter for patients? Developing core outcome sets for self-management interventions in chronic disease
Great effort by the whole consortium to disseminate the work carried out!
2nd Consortium Meeting in Ioannina, Greece
There is always good collaboration and exchange between all COMPAR-EU partners at different stages. In addition to work package-specific meetings in which involved partners participate, all consortium partners meet once a year. This year, our second consortium meeting took place on 30th of September and 1st of October 2019 in Ioannina, Greece. UOI hosted this event. The two full working days with discussions on the status of the project development were very fruitful. The extraction process for the first disease (Diabetes Mellitus Type 2) has been largely completed and network meta-analyses of the effectiveness of self-management interventions can begin. We are also starting to develop our final product, the COMPAR-EU platform featuring decision aids. Consortium meetings are very crucial as they foster interactive group discussion and drive our work forward.
Moving Measurement into Action: Designing Global Principles for Measuring Patient Safety
Today, 5th of September, a new Salzburg Global Seminar program “Moving Measurement into Action: Designing Global Principles for Measuring Patient Safety” begins. Around 50 health care leaders from across the world will convene in Salzburg to help design global principles for measuring patient safety. The program is held in partnership with the Institute for Healthcare Improvement (IHI) and is part of Salzburg Global’s Health and Health Care Innovation multi-year series. Additional support comes from the Gordon and Betty Moore Foundation and the Mexican Business Council Fellowship Program. Researchers, design thinkers, patients, providers, and experts in measurement and patient-safety will develop an actionable, cross-continuum framework for safety measurement.
Read the full preview
Go-Live of our Self-Management Blog
In June 2019, COMPAR-EU launched a Self-Management Blog that informs about developments in research, policy, and practice. Self-experience reports, interviews, guest articles, and more are published monthly. Beyond that, the COMPAR-EU team recommends monthly interesting scientific articles for reading.
The first blog article was designed by Jacqueline Bowman-Busato, a patient representative, who describes how she finally felt in control of her two chronic diseases. Read the full article “The importance of “self” and “management” in self-management of chronic diseases” on our blog.
You are interested in our recommended articles? Click “scientific article of the month“.
You wish to read more about a specific topic or have an idea for a new blogpost? Write us to firstname.lastname@example.org
Update of COMPAR-EU Data Management Plan
The Open Research Data Pilot aims to improve and maximise access to and re-use of research data generated by Horizon 2020 projects and takes into account the need to balance openness and protection of scientific information, commercialisation and Intellectual Property Rights (IPR), privacy concerns, security as well as data management and preservation questions.
Data Management Plans (DMP) are a key element of good data management. COMPAR-EU drafted a first version at the start of the project and describes how the data will be handled during and after the project, the types of research data that will be generated or collected during the project, the standards that will be used, how the research data will be preserved and what parts of the datasets will be shared for verification or reuse. This plan will be updated periodically. The first revision focused on improving the adaptation of the FAIR principles: making data findable, accessible, interoperable and re-usable. To this end we designed a new annex where detailed dataset descriptions can be shared, supported by example excerpts of the data and an electronic file with the database structure can be embedded.
Poster presentation on the development of COS
A lot of interested people were attracted by our COMPAR-EU poster on
“Prioritisation of patient-important outcomes in self-management interventions” (click on it to see it in full screen mode). One of our partner, OptiMedis AG, presented the development of the Core Outcome Sets (COS) at the 3rd symposium of a national network of health services researchers on 6th of May in Hamburg, Germany. The delegates were particularly interested in the process of patient involvement in our project. Obtaining patients´ unique perspectives and experiences ensures that research is relevant to patients. Self-management interventions aim to reduce symptoms, minimise disability, and improve quality of life. To determine the effectiveness of such interventions, patients´ views on the importance of such outcomes need to be considered.
The main emphasis of the symposium was on the transfer from research into practice. Questions like “How does implementation succeed?” and “What are the barriers?” were discussed from an international perspective. Really relevant to OptiMedis as the work package leader of WP9: Dissemination, exploitation and development of business plans. In COMPAR-EU, OptiMedis investigates various business models for the decision aids implementation and explores how the research findings can be best translated into routine clinical practice.