For Patients

For Patients

It is increasingly important to develop effective strategies for promoting self-care and self-management by patients and citizens. Governments seek to develop healthcare systems that guarantee high quality care with a special focus on the ageing population and the increase in chronic diseases. Technologies that enable self-management can provide a solution. COMPAR-EU identifies such technologies and helps patients to find the best solution for their specific condition.

What´s the COMPAR-EU´s benefit for patients?

COMPAR-EU aims to identify, compare, and rank the most effective and cost-effective self-management interventions (including preventive and management domains) in Europe for adults suffering from one of the four high-priority chronic diseases: type 2 diabetes, obesity, chronic obstructive pulmonary disease (COPD), and heart failure.

The objective of COMPAR-EU is to facilitate shared decision-making in different healthcare contexts. To achieve this, we will create decision aids to help patients understand different preventive and treatment options. Information about each option’s potential benefits and harms help patients determine what is personally important to them. In this way, patient decision aids enable patients to participate in the decision-making and to choose the healthcare interventions that take into account their personal preferences. These aids will be interactive, i.e. users are able to choose from a set of interactive settings the condition (and comorbidities) they are interested in, the key outcomes they want to improve, and contextual or individual factors that might influence the effectiveness of a SMI (gender, geographic area, healthcare system level, etc.). These decision aids will be implemented in our COMPAR-EU Platform.

What are self-management interventions (SMIs)?

The types of self-management interventions (SMIs) range from the provision of condition-specific information to extensive health programmes. Although SMIs may differ in content across and within conditions, they share a common goal. SMIs aim to improve the way patients self-manage their chronic condition. SMIs seek to improve patients’ ability to deal with the day-to-day consequences of their condition and to maintain an optimal quality of life. SMIs are important healthcare interventions as they can help to change bahaviour and improve outcomes. They include regular assessment of progress and problems.

Why is patient participation in research so important?

The participation of patients in the design and establishment of research priorities is an area that has progressively been stepping up. Patients´ participation brings added value. It allows us to advance in the knowledge on patient priorities regarding the care of their chronic conditions.

The European Patients’ Forum (EPF) will contribute to the project, ensuring that the patient perspective is considered in all aspects of this project.

As mentioned above, the focus will be on four conditions: type 2 diabetes, obesity, COPD and heart failure. Patients with those conditions will have the chance to directly participate in the project. In a so-called Delphi Consensus Process (DCP), patients can tell us about their priorities in health outcomes linked to their chronic disease. Afterwards, patients can participate in a workshop with healthcare professionals to discuss the results. Patients are also involved to test the developed patient decision aids. User experiences can help to optimise the decision-making tools.

What’s a DCP?

The Delphi Consensus Process is a technique which seeks to obtain consensus on the opinions of experts, termed panel members, through a series of structured questionnaires. The questionnaires will be in electronic format uploaded on a specially dedicated platform. There will be an analysis and a follow-up validation workshop.