All BLOG ARTICLES
Individuals and organizations can participate in shared decision-making with patient decision aids if there are sustainable incentives that motivate them to use them in routine clinical care.
The burden posed by a disease not only affects the sufferers, but also their relatives. Therefore, it is important to adopt a societal viewpoint when deciding which kind of costs and health benefits to include in an economic evaluation.
Even before we were confronted with the current pandemic, numerous online interventions to improve self-management were developed, evaluated and in some cases successfully implemented. In this article, I review some self-management enhancing PhD-projects and show how the actual usage (uptake) and implementation of our carefully developed interventions turned out there.
European Patients’ Forum (EPF) is a COMPAR-EU project partner, tasked with ensuring that patient centricity remains at the heart of the project’s activities, objectives, and future endeavours. In this edition, EPF shares what has been achieved so far in 2021 and highlights immediate next steps, mainly in connection to the work carried out by members of the Patient Panel.
Patient decision aids (PDAs) have been developed to enable people to be more involved in decisions and plans about their care. We briefly explore some of the key drivers and barriers to their adoption.
COMPAR-EU aims to rank the most (cost-)effective interventions for self-management and provide relevant research supporting this aim. In two recently published papers we provide standardized methods for the inclusion of future costs in cost effectiveness analyses, in the Netherlands  and England and Wales  respectively.
The European Patients´ Forum (EPF) is a COMPAR-EU consortium partner, tasked with ensuring that patient centricity remains at the heart of the project’s objectives. In this blog, EPF shares its 2021 plans to continue eliciting patient priorities and preferences, mainly through its work with the Patient Panel, among many other engaging activities that lie ahead.
After estimating the relative merit of self-management interventions, COMPAR-EU is developing different interactive tools to facilitate decision-making for different stakeholders and scenarios. We briefly outline three key interactive tools that will be available in a web-based platform in early 2022.
Network meta-analysis is tailored to deal with multicomponent interventions such as self-management interventions. We briefly discuss the challenges of analyzing multicomponent interventions and the benefits and limitations of two approaches (standard network meta-analysis and component network meta-analysis).
Patients can participate in a shared decision-making process about their health if they have access to relevant health information. Electronic health records have the potential to support SDM at every stage of the process.
Community health care can complement professional help. Positive effects can come from a sense of belonging. Cristina Spoiala explains how community health care can contribute to self-managing health.
Successfully self-managing a chronic condition can be challenging. In this blog, Raymond Nangle, patient advocate, shares his experiences on the significant challenges he has overcome to self-manage three chronic conditions.
It is time that self-management and associated concepts become the default position of health care systems
Self-management and self-care have been part of policy in many European health care systems for many years now. The NHS in England has now adopted a comprehensive model to make self-management part of everyday care. Jim Phillips, Executive Director for CEmPaC (www.cempac.org), who oversaw the implementation of the NHS Expert Patient Programme shares insights from the NHS and reflects on 20 years of development in the NHS.
It is of paramount importance to call stakeholders to action at macro-, meso-, and micro-levels to promote and support self-management as a base strategy in health planning for coping with COVID-19 during and after the lockdown periods.
Poor health literacy is shown to negatively affect people´s capacity to self-manage diseases. Monique Heijmans highlights the importance to improve health literacy and how COMPAR-EU aims to respond to health literacy problems.
Healthcare requires the integration of patients’ values and preferences. In COMPAR-EU, we are applying different methods to include the patients’ perspective all alongside the different stages of the project. Ena Niño de Guzman explains the importance of including this type of evidence, the methodology applied until now, and how these aspects will be incorporated.
Self-management interventions consist of several, possible interacting components. Dimitris Mavridis shares his experience of the statistical challenges in assessing the effectiveness of self-management interventions.
The objective of the health care system is to generate health, and that may come at a price. Which price? That is the key question cost-effectiveness analyses aim to address.
The features of the general practice/family medicine speciality in Europe include developing a person-centred approach. Dr Francisco Camarelles Guillem shares his experience with the challenges that General Practitioners (GP) have to face in their practice.
In 2019, European Patients’ Forum (EPF) has actively engaged with patients to ensure meaningful patient involvement is in place, and patient preferences are on board especially when it comes to key outputs produced by the project partners.
Testing and implementing self-management programs: new approaches needed in Health Technology Assessment and Health Policy
Promising Health Care Technologies, of which self-management programs are excellent examples, require new approaches, tools and foremost: attitudes in health practice, in health care research and in health policy.
With the rise of interest in self-management both in the academic circles and in day-to-day life, apps promising support to self-manage have increased significantly with mixed results and some promising tendencies.
There are various well-known myths about decision aids used in the clinical encounter. One of the most persistent one is the myth that decision aids extend the clinical encounter.
Successful self-management of a chronic condition goes far beyond the regular pill intake. Jacqueline Bowman-Busato shares her experiences on the challenges she had to face on her way to successful self-management.