Consensus on the most important outcomes

After the first two rounds of COMPAR-EU´s Delphi survey in May and June, a consensus meeting took place on 10th and 11th of July in Berlin, Germany. The first two rounds were only addressed to patients to gain their opinions on the most important outcomes for their respective disease. The purpose was to ensure that outcomes truly reflect patients’ priorities and preferences when it comes to selecting the most important outcomes, called the Core Outcome Set (COS). COS is an agreed standardised set of outcomes that should be measured and reported, as a minimum, in all clinical trials in specific areas of health or health care. In those first two rounds, patients were asked to electronically prioritise relevant outcomes using a Likert scale, ranging from 1 (lowest importance) to 9 (highest importance). In the consensus meeting, 20 patients, carers and their representatives were brought together with further 20 health care professionals, researchers and guideline developers from a diverse range of European institutions and organisations. Four panels (one for each condition: COPD, heart failure, type 2 diabetes, and obesity) were created to discuss and achieve consensus on the final COS to be included in the project. The purpose of this face-to-face meeting in Berlin was to solve potential tension between the perspectives of patients and those of researchers or clinicians, and the challenges that these different perspectives pose for COS development. Click here to read the whole report on the COS workshop in Berlin.